English publication
Koopman,
H.M., Theunissen, N.C.M., Vogels, A.G.C., Zwinderman, A.H., Verloove-Vanhorick,
S.P., & Wit, J.M. (1999). Health related quality of life of
children with a chronic illness: Parent versus child report. Gedrag
& Gezondheid, 27(1/2), 118-125.
Abstract
This study evaluates the agreement between child and parent reports on
children’s Health Related Quality of Life (HRQoL) in a sample of
416 Dutch children (8 to 15 years) with a chronic disease. Both children
and their parents completed a 56 item questionnaire (TACQOL) with seven
eight-item scales: physical complaints, motor functioning, autonomy, cognitive
and social functioning, positive and negative emotions. The correlations
between child and parent reports varied from -0.10 to 0.99 amongst the
various chronic conditions. Children reported lower HRQoL on the physical
complaints, motor functioning and positive emotions scales. Parents reported
lower HRQoL on the social, and negative emotions scales. The child and
the parent provide different information on HRQoL. Knowledge of both judgements
seems necessary in the care of children with a chronic illness and their
parents.
Keywords
health related quality of life, proxy,
children, parents, chronic illness