Quality of life publications of Nicolet C.M. Theunissen

• English publications
• English publications submitted
• Dutch publications
• English conference proceedings
• Dutch conference proceedings
• Other publications

English publications

• Boonstra, V.H., Arends, N.J.T., Theunissen, N.C.M., Koopman, H.M., Hokken-Koelega, A.C.S. (2006). CH 7. Improved health related quality of life in GH-treated children born small-for-gestational age (SGA). In: Boonstra, V.H. Short Children Born Small for Gestational Age (SGA). Ph.D. Thesis Erasmus MC (University Medical Center Rotterdam). ISBN: 9056773365.
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• Bannink,E.M.N., van-Pareren, Y.K., Theunissen, N.C.M., Raat, H., Mulder, P.G.M., Hokken-Koelega, A.C.S. (2005). Quality of life in adolescents born small for gestational age (SGA): Does growth hormone make a difference? Hormone Research, 64(4):166-174.
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• Stoelhorst, G.M.S.J., Martens, S.E., Rijken, M., van-Zwieten, P.H.T., Hofmeier, I., Roggeveen, H.C.J., Mourad-Baars, P.E.C., Theunissen, N.C.M., Verrips, G.H., Fekkes, M., Koopman, H.M., Zwinderman, A.H., Wit, J.M., & Veen, S. on behalf of The Leiden follow-up project on prematurity(2003). Quality of life in 1 year old preterm infants born before 32 weeks of gestational age. In: Stoelhorst, G.M.S.J. Development, Quality of Life and behavior at 2 years of age in very preterm infants. Ph.D. Thesis Leiden University Medical Center, The Netherlands: Drukkerijencombinatie Stramproy Weers bv. ISBN: 90-9016712-9, p.27-43.
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• Theunissen, N.C.M., Meulman, J.J., den-Ouden, A.L., Koopman, H.M., Verrips, G.H., Verloove-Vanhorick, S.P., & Wit, J.M. (2003). Changes can be studied when the measurement instrument is different at different time points. Health Services and Outcomes Research Methodology, 4 (2), 109-126 (published may 2004)
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• Theunissen, N.C.M., Kamp, G., Koopman, H.M., Zwinderman, A.H., Vogels, A.G.C., & Wit, J.M. (2002). Quality of life and self-esteem in children treated for idiopathic short stature. Journal of Pediatrics, 140(5), 507-515.
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  • press clippings
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• Theunissen, N.C.M., Veen, S., Fekkes, M., Koopman, H.M., Zwinderman, A.H., Brugman, E., & Wit, J.M. (2001). Quality of life in preschool children born preterm. Developmental Medicine and Child Neurology, 43, 460-465.
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• Theunissen, N.C.M., den-Ouden, A.L., Meulman, J.J., Koopman, H.M., Verloove-Vanhorick, S.P., & Wit, J.M. (2000). Health status development in a cohort of preterm children. Journal of Pediatrics, 137(4), 534-539.
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• Fekkes, M., Theunissen, N.C.M., Brugman, E., Veen, S., Verrips, E.G.H., Koopman, H.M., Vogels, T., Wit, J.M., & Verloove-Vanhorick, S.P. (2000). Development and psychometric evaluation of the TAPQOL: A health-related quality of life instrument for 1-5-year-old children. Quality of Life Research, 9(8), 961-972.
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• Theunissen, N.C.M., Kaptein, A.A., Koopman, H.M., Vogels, A.G.C., & Wit, J.M. (1999). Ch. 7: Quality of life in children in a longitudinal perspective: an exploratory review. In: Theunissen, N.C.M., Health related quality of life in children. Ph.D. Thesis Leiden University Medical Center. Ridderkerk, The Netherlands: Ridderprint (ISBN: 90-9013294-5.
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• Koopman, H.M., Theunissen, N.C.M., Vogels, A.G.C., Zwinderman, A.H., Verloove-Vanhorick, S.P., & Wit, J.M. (1999). Health related quality of life of children with a chronic illness: Parent versus child report. Gedrag & Gezondheid, 27(1/2), 118-125.
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• Verrips, G.H., Vogels, A.G.C., Koopman, H.M., Theunissen, N.C.M., Kamphuis, R.P., Wit, J.M., & Verloove-Vanhorick, S.P. (1999). Measuring health-related quality of life in a child population. European Journal of Public Health, 9(3), 188-193.
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• Theunissen, N.C.M., Vogels, A.G.C., Koopman, H.M., Verrips, G.H., Zwinderman, A.H., Verloove-Vanhorick, S.P., & Wit, J.M. (1998). The proxy problem: child report versus parent report in health-related quality of life research. Quality of Life Research, 7, 387-397.
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• Vogels, T., Verrips, G.H., Verloove-Vanhorick, S.P., Fekkes, M., Kamphuis, R.P., Koopman, H.M., Theunissen, N.C.M., & Wit, J.M. (1998). Measuring health-related quality of life in children: the development of the TACQOL-Parent Form. Quality of Life Research, 7, 457-465.
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• Verrips, G.H., Vogels, A.G.C., Verloove-Vanhorick, S.P., Fekkes, M., Koopman, H.M., Kamphuis, R.P., Theunissen, N.C.M., & Wit, J.M. (1997). Health-related quality of life measure for children -- the TACQOL. Journal of Applied Therapeutics, 1, 357-360.
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• Theunissen, N.C.M. (1994). Living with end-stage renal failure: A developmental task for the adolescent. In J. J. F. Ter Laak (Ed.), Voronovo thoughts on Developmental tasks: Research program developmental psychology Utrecht-Moscow. (95-114). Utrecht : Utrecht University.
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  • institution link

English publications submitted

• Koopman, H.M., Theunissen, N.C.M., Kamphuis, R.P., Zwinderman, A.H., Vogels, A.G.C., Verrips, G.H., Verloove-Vanhorick, S.P., & Wit, J.M. (Submitted).The DUX-25: a questionnaire for measuring health-related quality of life of children with a chronic disease.
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Dutch publications

• Vogels, T., Theunissen, N.C.M., Verrips, G.H., Koopman, H.M., Verloove-Vanhorick, S.P., & Kamphuis, R.P. (1996). Het meten van kwaliteit van leven bij kinderen met chronische aandoeningen (Assessing health related quality of life in chronically ill children). TIAZ, 3, 104-111.
  • samenvatting
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English conference proceedings

• Bannink, E. M. N., van-Pareren, Y. K., Raat, H., Theunissen, N. C. M., Mulder, P. G. M., & Hokken-Koelega, A. C. S. (2004). Improvement of Quality of Life in Adolescents Born Small for Gestational Age (SGA). Hormone Research 2004;62(Suppl.2):140-198. (DOI:10.1159/000081147)
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• Wit, J.M., Van-Balen, H., Theunissen, N.C.M., Bolt, I., & (2001). Growth Hormone (GH) treatment and changes in Quality of life. Pediatric Research, 49 (6, supplement: Paediatric Endocrinology Montreal, June 2001).
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• Theunissen, N.C.M., Kamp, G., Koopman, H.M., Zwinderman, A.H., Vogels, A.G.C., & Wit, J.M. (2000). Quality of life in children treated for idiopathic short stature: a two year controlled randomized follow-up study. Miniposter Book European Society for Paediatric Endocrinology, 39th Annual Meeting, Brussels, Belgium, 17-19 September, 24-24.
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• Theunissen, N.C.M., Kamp, G., Koopman, H.M., Zwinderman, A.H., Vogels, A.G.C., & Wit, J.M. (2000). Quality of life in children treated for idiopathic short stature: a two year controlled randomized follow-up study. Hormone Research, 53(suppl 2), 46-46.
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• Theunissen, N.C.M., (1999). What we have learned about health related quality of life (HRQoL) in children.... Lecture during a symposium about Quality of Life in Children at 14 december on the occasion of my PhD thesis, at TNO-PG, Leiden, The Netherlands.
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  • related article by R. Geenen
  Theunissen, N.C.M., Vogels, A.G.C., Koopman, H.M., Verrips, G.H., Zwinderman, A.H., Verloove-Vanhorick, S.P., & Wit, J.M. (1998). The proxy problem: Child report versus parent report in health related quality of life research. Second Dutch Conference on Psychology & Health, Rolduc, Kerkrade, 25-27 May, 205.
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• Koopman, H.M., Theunissen, N.C.M., Vogels, A.G.C., Kamphuis, R.P., & Verrips, G.H. (1998). The DUC-25: A short-form questionnaire for measuring health related quality of life of children with a chronic illness. Quality of Life Research, 7, 619-619.
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• Theunissen, N.C.M., Veen, S., Martens, S., Haan, M.d., Fekkes, M., Verrips, G.H., Verloove-Vanhorick, S.P., Koopman, H.M., & Wit, J.M. (1997). Quality of life at 1-4 years of age in relation to a medical history of premature birth or other neonatal problems. 4th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vienna, Austria, 4-9 November, Quality of Life Research, 6(7/8), 730. Awarded with a Young Investigator's Poster Award.
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• Verrips, G.H., Fekkes, M., Theunissen, N.C.M., Brugman, E., Veen, S., Koopman, H.M., Wit, J.M., & Verloove-Vanhorick, S.P. (1997). The TAIQOL: a generic health-related quality of life measure for 1 -4 year olds. 4th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vienna, Austria, 4-9 November, Quality of Life Research, 6(7/8), 736.
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• Koopman, H.M., Kamphuis, R.P., Verrips, G.H., Vogels, A.G.C., Theunissen, N.C.M., Verloove-Vanhorick, S.P.& Wit, J.M. (1997). Health related quality of life of children with juvenile chronic arthritis. 4th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Vienna, Austria, 4-9 November, Quality of Life Research, 6(7/8), 671.
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• Koopman, H.M., ten-Cate, R., van-Rossum, J., van-der-Linden, P., Bekkering, P., Theunissen, N.C.M., & Wit, J.M. (1997). Health related quality of life of children with juvenile chronic arthritis. Revue du Rhumatisme, October 15, 240S-240S.
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• Theunissen, N.C.M., Den Ouden, L., Verloove-Vanhorick, S.P., Verrips, G.H., Koopman, H.M., Kamphuis, R.P., Tromp, D., & Wit, J.M. (1997). Reconstruction of health status at five, nine and ten years of age in children born prematurely. 11th conference of the European Health Psychology Society, Bordeaux, France, 3-5 September, 112.
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• Verrips, G.H., Fekkes, M., Theunissen, N.C.M., Brugman, E., Veen, S., Koopman, H.M., Wit, J.M., & Verloove-Vanhorick, S.P. (1997). Psychometric evaluation and validation of the TAIQOL: a generic health related quality of life measure for 1-4-years-olds. 11th conference of the European Health Psychology Society, Bordeaux, France, 3-5 September, 112.
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• Theunissen, N.C.M., Vogels, A.G.C., Verrips, G.H., Koopman, H.M., Verloove-Vanhorick, S.P., Kamphuis, R.P., & Wit, J.M. (1997). The proxy problem: parents and children's view on children's HrQOL. ISOQOL: 3rd international conference for quality of life research, Manilla, Philipines, October 24-27 1996. Quality of Life Research, Vol. 6, No. 5, pp. 429-430.
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• Koopman, H.M., Kamphuis, R.P., Verrips, G.H., Vogels, A.G.C., Theunissen, N.C.M., Fekkes, M., Verloove-Vanhorick, S.P., & Wit, J.M. (1997). The DUCATQOL: A Global Measure of Quality of Life of School-aged Children. ISOQOL: 3rd international conference for quality of life research, Manilla, Philipines,October 24-27 1996. Quality of Life Research, Vol. 6, No. 5, pp. 428.
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• Verrips, G.H., Vogels, A.G.C., Fekkes, M., Theunissen, N.C.M., Koopman, H.M., Kamphuis, R.P., Wit, J.M., & Verloove-Vanhorick, S.P. (1997). The Validity of the TACQOL- Child Form: A Quality of Life Questionnaire for Children. abstract: 3rd international conference for quality of life research, Manilla, Philipines, October 24-27 1996. Quality of Life Research, Vol. 6, No. 5, pp. 427.
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• Vogels, T., Verrips, G.H., Theunissen, N.C.M., Koopman, H.M., Kamphuis, R.P., Wit, J.M., & Verloove-Vanhorick, S.P. (1997). The Validity of the Dutch TACQOL- Parent Form in a Normal Population. ISOQOL: 3rd international conference for quality of life research, Manilla, Philipines, October 24-27 1996. Quality of Life Research, Vol. 6, No. 5, pp. 429.
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• Verrips, G.H., Vogels, A.G.C., Koopman, H.M., Kamphuis, R.P., Fekkes, M., Theunissen, N.C.M., Wit, J.M., & Verloove-Vanhorick, S.P. (1996). Validating the Dutch TACQOL-Parent form: a health related quality of life questionnaire for children. 10th European health psychology society conference, Dublin, 4-6 September, 19-19.
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Dutch conference proceedings

• Verrips, G.H., Vogels, A.G.C., Fekkes, M., Theunissen, N.C.M., Koopman, H.M., Kamphuis, R.P., Wit, J.M., & Verloove-Vanhorick, S.P. (1997). De validiteit van de TACQOL-Kinderversie; een kwaliteit van leven meetinstrument voor kinderen. Lezing Academisch Ziekenhuis Leiden.
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• Theunissen, N.C.M., Vogels, A.G.C., Verrips, G.H., Koopman, H.M., Kamphuis, R.P., Zoelen, C.W.M., Fekkes, M., Verloove-Vanhorick, S.P., & Wit, J.M. (1996). Het proxy probleem: de kijk van ouders en kinderen op de gezondheidsgerelateerde kwaliteit van leven van het kind. samenvattingen 18de Congres Veldhoven, 6-8 november, Ned.Tijdschrift Geneeskd,Suppl.1,89-90.
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• Kamphuis, R.P., Verrips, G.H., Koopman, H.M., Vogels, T., Theunissen, N.C.M., Fekkes, M., Wit, J.M., & Verloove-Vanhorick, S.P. (1996). Kwaliteit van leven van zieke kinderen: de visie van de arts, het kind en zijn ouders. samenvattingen 18de Congres Veldhoven, 6,7,8 november, Ned.Tijdschrift Geneeskd, Suppl.1, 47-48.
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• Theunissen, N.C.M., & Boekhoff, G.H.F. (1993). Over leven van jeugdige nierpatiënten: een samenvatting. Congres PSYCHON-werkgemeenschap Ontwikkelingspsychologie, 18 en 19 maart te Dalfsen. Tijdschrift voor Ontwikkelingspsychologie, 20(1), 93-95.
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Other publications

• Theunissen, N.C.M. (2000). Health related quality of life in children. Tijdschrift Kindergeneeskunde, 68(4), 169-169.
  • samenvatting
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• Vogels, A.G.C., Verrips, G.H., Koopman, H.M., Theunissen, N.C.M., Fekkes, M., & Kamphuis, R.P. (2000). TACQOL Manual. Leiden: Leiden Center for Child Health and Pediatrics LUMC-TNO.
  • samenvatting
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  • request for sample

  Theunissen, N.C.M. (1999). Health related quality of life in children. Ph.D. Thesis Leiden University Medical Center. Ridderkerk, The Netherlands: Ridderprint. ISBN: 90-9013294-5

• Dutch library availability
• Thesis content (pdf)
• Chapter 1: Introduction (pdf, 28k)
• Chapter 2: see Verrips et al. 1999
• Chapter 3: see Theunissen et al. 1998
• Chapter 4: see Koopman et al. 1999
• Chapter 5: see Fekkes et al. 2000
• Chapter 6: see Theunissen, Veen et al.2001
• Chapter 7: see Theunissen, Kaptein et al. 2001
• Chapter 8: see Theunissen, Meulman et al. 2001
• Chapter 9: see Theunissen, den-Ouden et al. 2001
• Chapter 10: see Theunissen, Kamp et al. 2001
• Chapter 11: General discussion (pdf, 80k)
• Summary (pdf, 40k)
• Samenvatting (pdf, 44k)
• extra: Congresverslag van een door TNO Preventie en Gezondheid en het Leids Universitair Medisch Centrum (LUMC) georganiseerd symposium Quality of life research in children op 14 december 1999 te Leiden: Geenen,R (2000) Kwaliteit van leven bij kinderen met gezondheidsproblemen. Gedrag en Gezondheid, 28(2) 71-73.